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| health > cancer > story page |         |
Privacy for research cancer patients exploredDecember 3, 1999 WASHINGTON (CNN) -- The National Cancer Institute (NCI) unveiled draft guidelines Thursday to ensure medical privacy for patients involved in cancer research. The NCI acknowledged that while both the public and researchers benefit from research data that is identifiable, individuals who participate in research also have the right to expect that their data will be kept private and protected from unauthorized use. NCI decided to "take the lead" in ensuring the confidentiality in hopes that "other organizations will follow suit," according to a spokesman for the institute. The recommendations would cover patient privacy on all types of medical information -- on paper, in electronic files, on tissue and blood samples and in DNA data. Further recommendations include:
The NCI guidelines are consistent with electronic guidelines the Clinton administration unveiled in October, which said most medical information could not be shared without a patient's consent. Those guidelines also gave patients the right to see their own medical records, including who else has reviewed them. Patients would also have the right to correct mistakes in their records. RELATED STORIES: Clinton plan would tighten medical privacy RELATED SITES: National Cancer Institute
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